egg

Lei (18+ years old)

We found out about our daughter’s allergies when she reacted with hives to peanut butter at 5 months old. We saw an allergist, who found allergies to peanut, dog, dairy, and egg. Since then, she’s also reacted to flax and cashew. We’re still in the thick of it and learning fast, but we’re on a list to start OIT (oral immunotherapy) and are working on egg and dairy ladders.

I’ve found it helpful to follow content creators of food-allergy kids, as well as joining allergy parent groups on Reddit and Facebook. The biggest help has been finding people who can relate, since I don’t know anyone in my life who deals with food allergies.

We used Rupall medications.

(@Young_healerss – 7 years old)

My husband had allergies as a child, but I was completely new to it. My daughter developed allergies at age 2, and my son at 6 months old. Before that, she used to eat everything. She’s allergic to dairy, eggs, nuts, sesame, strawberries, coconut, and all citrus fruits. My son has similar allergies, with the addition of all lentils.

My daughter struggled with allergies and eczema from age 2 to 7. She started methotrexate last November, and her skin has been doing well since. My son is also on methotrexate and doing well too. We still avoid all their allergens and are hoping they can outgrow their allergies over time.

We found Facebook groups for kids with eczema through Google helpful along the way.

We used methotrexate, folic acid, and fexofenadine medications.

Torfun (@t0rfn – 17 years old)

My allergic reaction started when I was 8 months old, but because of my age, doctors couldn’t provide a diagnosis yet. My second reaction occurred when I was 1 year and 2 months old; the reactions included eye swelling, coughing, and rashes. I then went through skin testing and was diagnosed with allergies to gluten and albumin (egg white).

The first method I followed was avoidance, waiting for the allergy to heal naturally. Throughout this process, I had to carry a large bag of essentials for my allergy, including medication and an EpiPen. However, the results were unclear, as my blood test allergy levels didn’t show signs of decreasing, and carrying the bag everywhere slightly impacted my school life.

After I turned 9 years old, I tried another treatment method called OIT (Oral Immunotherapy), starting with egg. This treatment showed very clear results, and I was able to eat a whole egg within six months. I continued this treatment with gluten, starting with only 30 milligrams of gluten powder daily. After 10 months, I was able to eat 45 grams of gluten (about 3 pieces of bread), and I maintained this amount for 6 months. My doctor then suggested I try different kinds of food while maintaining the same gram amount, including spaghetti, pizza, donuts, and snacks.

Finally, after a year, I was able to travel EpiPen-free and consume gluten and eggs normally like everyone else. It has been 6 years, and I am still extremely grateful and enjoy everything I can eat!

Since I was very young when I was diagnosed, my mother was responsible for all the research. She visited every page and joined every group affiliated with food allergies that she could find, as well as baking and cooking pages dedicated to children with food allergies, since everything I ate had to be homemade.

Katie (@Katiehollcreative – 9 years old)

Our first experience with food allergies was when our oldest, now nine, had her first reaction at 6 months old at daycare. There were certainly symptoms she experienced prior that could have alerted us to food allergies, such as eczema and excessive spitting up after eating, but it was initially always diagnosed as reflux until she had formula mixed with her oatmeal. That’s when we had her tested and found out she was allergic to milk, egg, peanut, and tree nuts. Fast forward, all three of our children have multiple food allergies, some anaphylactic. Between the three, we manage milk, egg, peanut, tree nuts, and shrimp. We’ve done some oral challenges and have been able to cross some off, but each has epipens and also our oldest two have asthma.

We didn’t get a lot of information from our allergist apart from “avoid these foods” so it was a big learning curve navigating this new lifestyle. I found lots of useful information on the Food Allergy Research and Education’s (FARE) site and after a few years, found some great Facebook groups to connect and learn from others in the community. Other useful sites were FAACT and Allergic Living. I also wrote a children’s book about multiple food allergies to help educate and bring more awareness to the community in general.

Meryl (@merylottenstein1 – 18+ years old)

I had a reaction to nuts when I was 2 yr’s old. I saw many doctors as back then allergies were not very common. I was tested and was allergic to peanuts and tree nuts, and tomatoes. I also have asthma and oral allergy syndrome. I was on different medications and basically made sure not to eat anything with nuts in it. As I’ve gotten older my allergies have increased and I am now ana to eggs and allergic to wheat and many additives. I make sure to read all labels and have started cooking more. It can be very anxiety provoking and I am learning to do meditation and yoga. If I am in social situations where there is food I do not eat it if I feel uncomfortable. Many people don’t understand but I have to put myself first. We need to be our own best advocates. I use Flovent, Proventil, and Singulair medications.

I use FARE for information and many Instagram accounts that provide recipes and support. I believe in research and advocacy and hope that there will be a cure soon. Many more people have allergies today and it seems that there have been a lot of good changes. Social media is very helpful as well as the apps for eating out. It’s important to find a good doctor and always pay attention to symptoms. Don’t be afraid or embarrassed to speak up about it.

Iya (8 years old)

When my daughter was about 9 months, her preschool teacher called to let me know she was fussy and was tugging on her ears. I recommended some Tylenol since it sounded like an oncoming ear infection. Five minutes later she called and said my daughter’s face was swelling and they had to call 911. This obviously was very terrifying. I worked about 25 minutes away, so called my husband who worked locally to head that way. Luckily, our daughter was breathing fine. We took her to urgent care and gave her benadryl which helped with the swelling and itching. We believe she ate eggs for the first time that morning. This prompted allergy testing where we found out she was allergic to peanut, tree nuts, eggs, sesame. We later found out she has an allergy to green peas. She can now have baked egg. We think we will be able to challenge egg and sesame soon. We use epinephrine and benadryl as needed.

At first, we relied on our allergist and pediatrician for resources. When she was younger, I used relevant FB groups to see how other parents navigated certain situations. I’ve used the Food Allergy Fund and FARE as a resource.

Nathan (1 year old)

Nathan went into anaphylactic shock after a small spoon of peanut butter when I introduced it to him at 7 months of age. He has not overcome this allergy, and since then we have discovered he is also allergic to eggs and milk (after having reactions to ingestion) and cashews and pistachios (after skin prick testing for tree nuts). All allergens were confirmed by IgE blood testing and we monitor them every 6 months.

I really didn’t know much about food allergies (including the top 9) when I started introducing foods. We have no history of food allergies in my family or my in-laws. Since his diagnosis, I have been on a mission to find as many resources as possible- through Instagram, podcasts, health care providers, and the community.

Harper (@anaphylactic_kid – 3 years old)

From the moment we started introducing foods to Harper at 6 months old we had problems itchy hives rashes etc. She is our only child so we didn’t know what it was. Even thought it must be normal for babies when they eat certain foods. We got to see an allergist who tested her for eggs and sent us home with Epipens, recommended watching YouTube videos to learn how to use them. 2 years (and lots of hospital visitors for testing, anaphylaxis and check ups) go by and having hot rock bottom after witnessing a very serious anaphylactic shock that nearly took my beloved baby from us. We joined Instagram as a way to connect with others like us and find support… boy did we find support love friends and the answer to our prayers @socalfoodallergy provide a treatment for food allergies like Harper’s and she’s now half way through treatment and should be at complete food freedom by the time she starts school. None of this would have been possible without the amazing people who found us via Instagram. Forever grateful that we get to share our journey with you all.

I reached out to a Facebook moms group who informed me it wasn’t normal and to book to see my GP. I attended zoom meeting ups with other moms of kids with allergies and that’s were I first heard about @socalfoodallergy later on @natashasfoundation contacted me to feature our story on their page. And another mum who was doing to TIP program reached out to me to tel me about this life changing treatment. Our lives have changed so much and the best is yet to come.

Ronin (10 years old)

As an infant, we suspected Ronin had eczema and food sensitivities because he was always fussy and blotchy and would spit up after breastfeeding. The pediatrician suggested switching him to a special baby formula at 4 months old. So, we did. But there was no mention of food allergies. At one years old, he had his first reaction to food. It was on vacation while eating some scrambled eggs. I still remember running around like a chicken with its head cut off- because we had no clue what was going on. He had another reaction shortly after that to his birthday cake. It was then that the pediatrician ordered a food allergy panel and it was determined Ronin was allergic to soy (false positive), dairy, egg, peanut, and treenuts. He still has all of those same allergies including a tomato allergy.

We didn’t use any websites early on in our diagnosis because the whole thing was just so new and overwhelming and we honestly had no idea how many resources are actually out there. But in the years since, we have relied heavily on FARE and Allergic Living.

 Jaime (@triofudge – 6/4 years old)

When my son was 10 months old he had an anaphylactic reaction to peanut butter. I didn’t know it at the time because that was our introduction into food allergies! Since then we have added some allergens to the list of ones we manage. Between our two children (ages 6 and 4) we manage: peanuts, tree nuts, sesame, egg, shellfish and banana. Peanuts, shellfish, egg, and banana were confirmed from having reactions, and then with annual follow-up skin and blood tests at our allergist’s office. Sesame and tree nuts are confirmed through testing only. Both children are currently undergoing SLIT treatment (SubLingual ImmoTherapy) at Allergenuity in North Carolina. We are hoping SLIT will protect against cross contact and hopefully lead to more free eating.

We use information from FARE to educate ourselves, family members, care takers, and school staff members on food allergies in general, how to recognize symptoms and reactions, how to administer epinephrine, and how to create an Emergency Action Plan that fits our family’s needs. We have used information from FAACT to develop 504 plans for public school.