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  Benjamin, Christopher and Abigail (@themomplicatedeater)

October 17, 2022 / , , , , , , ,

When Benjamin was 6 months old, I had eaten a peanut butter and jelly sandwich and given him a kiss on his neck. He broke out in hives in the area he was kissed pretty soon after. We took him to an allergist who diagnosed him. Since then his blood work results have continued to worsen. For both of my subsequent children, our allergist tested them before we introduced foods. With my second child, he was positive for dairy and egg, which I had not cut out of my diet (and was breastfeeding), but did so after his diagnosis. We saw huge improvements with his skin and discomfort level. Our third baby is about to be tested, but based on similar signs that Christopher displayed, I eliminated dairy, egg, soy, gluten and peanuts at 8 weeks of age.

We were so unaware when Benjamin was first diagnosed. But as we’ve attempted OIT and experienced anaphylaxis at home, we have joined Facebook groups, receive several newsletters and follow multiple accounts on IG to learn and grow. Some of the resources we use currently are Allergen Inside and Susie at Spokin.

Landon (1 years old)

October 17, 2022 / , , ,

I learned about my son’s food allergies when he was only 6 months old. What was supposed to be a fun milestone (baby’s first food!) turned into a very scary situation, where he had an anaphylactic reaction to pureed peas. After he saw an allergist, they ran some blood work and he tested positive to eggs, peas, peanuts, and a handful of tree nuts. Since then, while slowly introducing new foods, we have unfortunately discovered more allergens.

We used FARE. Also a lot of blogs from other food allergy moms, Facebook groups, and social media.

Daveigh Bea (1 year old)

October 14, 2022 / , , , , , , , , , , , , ,

When we first started introducing solids to little miss we noticed small hives and redness with eggs and milk products as well as an increase in her eczema. At first we did not think much about it and I kept exposing her to milk and eggs thinking she would get use to it but instead she kept getting redness, hives and runny noses. All this would improve with a bath and dose of zyrtec. I had bought some peanut butter banana food pouches and we had given them to her with what I thought was no reactions but one afternoon I came home to my husband freaking out and showed me the baby and she was covered head to toe in welts and hives, he told me all he gave her was the banana peanut butter about 10 minutes prior. She then proceeded to vomit multiple times, now at this point I am still not educated on food allergies or reactions but knew something was wrong so we took her to urgent care by the time we got there the benedryl had kicked in and she was doing better so urgent care pretty much dismissed us. Looking back I realized that she had been having small delayed reactions to peanut butter as she had been vomiting randomly but each time I had given her peanut butter I just did not correlate the two. Currently I am waiting to get into see an allergist as I have had to educate and advocate for ourselves. Our pediatrician did the blood allergy test and gave us an EpiPen and said she was too young for an allergist. Right now her allergies are peanut, eggs, dairy, wheat, oats and peas. We have excluded those foods and have had no reactions and her eczema is gone. We are hoping to try some food challenges once speaking to an allergist. She is now 15 months old still breastfeeding and we have found many safe foods and she is happy and thriving!

I found the websites FARE, The Food Allergy Counselor, and joined some food allergy groups on Facebook. I took it up on myself to learn about food allergies and symptoms of anaphylaxis. I am a mental health therapist and realized I was having increased anxiety around feeding her which let me to the Food Allergy Counselor social media and website where I educated myself on how to help others parents with the same anxious feelings I was having. I educated myself enough to become one of the therapist on their directory for my state I knew if I as a therapist was having these anxious thoughts and feelings there had to be more parents out there that may need an allergy informed therapist!

Elias (1 year old)

October 13, 2022 / , , , , , , , , , ,

We were dealing with eczema since he was 3 mo that old and at times it was so bad he’d scratch and bleed. We went to the pediatrician 4 or 5 times and tried so many ointments. Lots of wrong diagnosis led to my frustration. Then someone suggested seeing an allergist. We learned he was allergic to eggs and dairy from when he consumed them directly because he broke out in hives. Through breast milk it was presenting as eczema. Once he tried wheat he also had hives from that. I had to remove those confirmed allergens from my diet and he was prescribed epipens. I have suspicions of other foods that he is sensitive to but not necessarily breaking out in hives. Those include beef, soy, tomatoes and strawberries.

Primarily diagnosed through seeing hives and then skin and blood test confirmed it. I knew something was wrong from the beginning because he used to cry so much and had such bad colic and gas. He also used to spit up significantly almost every feeding. Once allergens we’re removed form both of our diets his eczema cleared, he was a happier baby, and the gas issues also seemed to resolve.

 Cameron (10 years old)

October 5, 2022 / , , , , , , , , ,

Our son was 13 months when he was diagnosed with his first allergy. I fed him mashed peas and he started coughing, then choking a bit and developing hives. His coughing was persistent and he started vomiting as well. It was really scary and I remember feeling helpless. I called 911 and was alone at the time. Before that incident, our son had vomited regularly after eating some foods and we attributed it to reflux. He also had terrible eczema and we just thought he had overly sensitive skin. After an upper GI and swallow study, a few different medications and other specialists evaluating his immunology responses, we finally looked at food allergies as a test. It felt like the most non-linear maze until we got to the pea reaction…and then we followed up with blood work and a skin scratch test. The tests confirmed that our son was anaphylactic to peanuts, most tree nuts, eggs, most legumes (including peas), mustard, sesame and soy protein. He is currently 10.5 years old as of 2022 and has not outgrown any of his food allergens yet.

Once diagnosed, we found FARE, Kids with Food Allergies and FAACT to be the most informative and helpful for creating allergy plans, what to include in an allergy bag and how to understand the basics (reading labels, understanding and preventing cross-contact, and understanding emergency signs and symptoms of a reaction). For every day living, I found several blogs with tips and tricks, recipes and people steps ahead on the journey who could detail tools for navigating this forward-facing health condition! Each meal requires careful planning and we had to reorient our thinking to anchor our plans in safety while also having fun. I was also finding that the Facebook groups brought together families out of trauma (after reactions) and fears (of future reactions) and as a caregiver I didn’t want to raise my kids with extra anxiety. I ended up creating Feedyourcan.com (when some foods you just can’t) as an empowering way to use the struggle as the teacher to help our kids build lasting life skills that will serve them well in food AND non-food challenging situations.

Maria Alexander (@allergy.with.me04 – 18+ years old)

October 5, 2022 / , , , , ,

When I was a baby, I had terrible rashes all over my skin and would itch constantly. I would not keep food down, so when I was around 6 months old I had gotten allergy tested. My blood test showed up with dairy, wheat/gluten, chicken, turkey, egg, shellfish, peanut, tree nut, oat, barley, pea. I have single grown out of a few allergens, but I still have a majority of them.

A lot of the information that my mom and dad used was from FARE and some different books.

Emily (@allergyandwe – 18+ years old)

August 24, 2022 / , , , , , , , , , ,

I was born with extreme eczema especially in the face. After getting breast milk I always reacted. My parents took me immediately to our doc and special allergist. They figured out during my first weeks and months that I have many allergies. I did overcome a lot while growing up. Now I’m still allergic to peanut, egg, soy, peas, lentils, beans and kiwi. I’m also lactose and histamine intolerant but I manage to have it on a normal basis in discussion with my natural practitioner.

My parents mostly reached out to the best docs and allergists in Germany. Since two years I go to a natural practitioner who works on a scientific basis and starts with the roots (gut health and immune system). I really do recommend looking for one working scientifically and visiting on a regular basis.

@ollie.eats.food (1 year old)

October 5, 2022 / , , ,

We first realized Ollie had an allergy when he reacted to a new formula. Large white welts spread across his face wherever it had touched his skin. After a hospital trip, blood tests and skin prick tests, we found out he had Cows Milk Protein Allergy along with peanut and egg allergy. We avoid all of these foods and he’s thriving and happy. I found the Instagram allergy community so helpful and supportive. We follow lots of fellow parents/children who also suffer allergies. They’re always full of great tips and meal inspiration.

Lauren (18+ years old)

January 5, 2022 / , , ,

From when I was a baby I was able to eat all foods and was able to have everything. I had no issues with food until my late teens when it all started. In 2017/18 I noticed that I would become unwell soon after eating meals/snacks and first thought that it could have been a bug but then noticed it was happening more regularly and only after I had certain foods which had dairy in them. This then lead me to think that I could be dairy intolerant, so I spoke to the doctor and after a discussion with them I was referred to the dietitian. Before my appointment I had to keep a food diary to track what I was eating and what reaction I was having after it, when I went to my appointment we discussed my symptoms and after our discussion it was decided that I was to avoid dairy completely from my diet. Then a couple years later I began to start becoming unwell again after meals/snacks and thought like I did with the dairy, is it a bug? But no it turned out that I was becoming unwell with egg, then a few months later I was becoming unwell again and because I had already taken dairy and egg out of my diet, the only other allergen I had eaten was gluten/wheat! So I then spoke to the doctor and got another referral to the dietitians; I had to do another food diary, when I spoke to them I discussed about how I was becoming unwell after having egg and gluten/wheat and that it just seems to be one thing after another I am now not able to have. So they said that I should remove them completely from my diet and to start taking multivitamins daily to help make sure I am still getting the nutrients. I’ve also had allergic reactions to vegan cheese as well where my neck and lips become really itchy and my throat and tongue become tingly, so I avoid this too! I’m still currently avoiding all dairy, egg and gluten/wheat and all vegan cheeses. But sometime not in the near future I might reintroduced these one by one in small amounts. I used the NHS website a lot when figuring out symptoms, and google in general. I also got good leaflets from my couple of appointments from the dietitians as well.