anaphylaxis

Nathan (1 year old)

Nathan went into anaphylactic shock after a small spoon of peanut butter when I introduced it to him at 7 months of age. He has not overcome this allergy, and since then we have discovered he is also allergic to eggs and milk (after having reactions to ingestion) and cashews and pistachios (after skin prick testing for tree nuts). All allergens were confirmed by IgE blood testing and we monitor them every 6 months.

I really didn’t know much about food allergies (including the top 9) when I started introducing foods. We have no history of food allergies in my family or my in-laws. Since his diagnosis, I have been on a mission to find as many resources as possible- through Instagram, podcasts, health care providers, and the community.

Harper (@anaphylactic_kid – 3 years old)

From the moment we started introducing foods to Harper at 6 months old we had problems itchy hives rashes etc. She is our only child so we didn’t know what it was. Even thought it must be normal for babies when they eat certain foods. We got to see an allergist who tested her for eggs and sent us home with Epipens, recommended watching YouTube videos to learn how to use them. 2 years (and lots of hospital visitors for testing, anaphylaxis and check ups) go by and having hot rock bottom after witnessing a very serious anaphylactic shock that nearly took my beloved baby from us. We joined Instagram as a way to connect with others like us and find support… boy did we find support love friends and the answer to our prayers @socalfoodallergy provide a treatment for food allergies like Harper’s and she’s now half way through treatment and should be at complete food freedom by the time she starts school. None of this would have been possible without the amazing people who found us via Instagram. Forever grateful that we get to share our journey with you all.

I reached out to a Facebook moms group who informed me it wasn’t normal and to book to see my GP. I attended zoom meeting ups with other moms of kids with allergies and that’s were I first heard about @socalfoodallergy later on @natashasfoundation contacted me to feature our story on their page. And another mum who was doing to TIP program reached out to me to tel me about this life changing treatment. Our lives have changed so much and the best is yet to come.

 Jaime (@triofudge – 6/4 years old)

When my son was 10 months old he had an anaphylactic reaction to peanut butter. I didn’t know it at the time because that was our introduction into food allergies! Since then we have added some allergens to the list of ones we manage. Between our two children (ages 6 and 4) we manage: peanuts, tree nuts, sesame, egg, shellfish and banana. Peanuts, shellfish, egg, and banana were confirmed from having reactions, and then with annual follow-up skin and blood tests at our allergist’s office. Sesame and tree nuts are confirmed through testing only. Both children are currently undergoing SLIT treatment (SubLingual ImmoTherapy) at Allergenuity in North Carolina. We are hoping SLIT will protect against cross contact and hopefully lead to more free eating.

We use information from FARE to educate ourselves, family members, care takers, and school staff members on food allergies in general, how to recognize symptoms and reactions, how to administer epinephrine, and how to create an Emergency Action Plan that fits our family’s needs. We have used information from FAACT to develop 504 plans for public school.

  Benjamin, Christopher and Abigail (@themomplicatedeater)

When Benjamin was 6 months old, I had eaten a peanut butter and jelly sandwich and given him a kiss on his neck. He broke out in hives in the area he was kissed pretty soon after. We took him to an allergist who diagnosed him. Since then his blood work results have continued to worsen. For both of my subsequent children, our allergist tested them before we introduced foods. With my second child, he was positive for dairy and egg, which I had not cut out of my diet (and was breastfeeding), but did so after his diagnosis. We saw huge improvements with his skin and discomfort level. Our third baby is about to be tested, but based on similar signs that Christopher displayed, I eliminated dairy, egg, soy, gluten and peanuts at 8 weeks of age.

We were so unaware when Benjamin was first diagnosed. But as we’ve attempted OIT and experienced anaphylaxis at home, we have joined Facebook groups, receive several newsletters and follow multiple accounts on IG to learn and grow. Some of the resources we use currently are Allergen Inside and Susie at Spokin.

@peanotforme – 18+ years old

When I was ~1.5 years old, my mom gave me a slice of toast with a thin layer of peanut butter. My whole face turned red immediately and I was given antihistamines. It took hours for the redness to dissipate! We visited my pediatrician and allergist to have me tested. I had huge topical reactions to each nut on the skin prick test. With every reaction to peanuts / tree nuts I have had since then, my allergy became more sensitive and severe to the point where I can’t even be in the same room as nuts without reacting. I cannot eat anything made in a facility or on the same equipment as nuts because I risk anaphylaxis. 

I have never been able to overcome my allergy and was instructed by multiple allergists to not pursue oral immunotherapy (OIT) since it was too risky. But, I like to look on the bright side of living with a severe food allergy! I’ve gained great life skills such as awareness of my surroundings, attention to detail, and compassion. And… as someone with a sweet tooth… it’s a good reason to not eat every piece of candy / baked good in sight!

Growing up, I was the only child in my class with a severe food allergy. The awareness for severe food allergies was not very widespread and protocols were not really developed. My mom referred to my doctors’ advice and saw forums online regarding other parent’s advice on having a child with nut allergies. 

I have suffered a myriad of reactions from itchy throat / redness all the way to an almost deadly anaphylaxis event. As scary as each reaction is, you learn more about your allergy and develop a routine regarding medication. Recently, I redid a skin prick and blood test to specify which nuts I am allergic to now. It has helped me to quantify and understand my allergy more—though I will still be staying FAR away from nuts.

 Omar (15 years old)

Diagnosed with Milk protein allergy as an infant at age 4 months. Diagnosed with tree nut allergies after anaphylaxis at age 2.

My son can tolerate small amounts of dairy but doesn’t eat it often. He’s outgrown some nut allergies but not all.

Used Epi-pen for emergencies only.

Diagnosed before there was information available.

Alexis (@alexisallergic – 18+ years old)

I never had a food allergy until I turned 24 and it happened out of the blue. One day I’m fine, the next I’m going into anaphylaxis over things that I ate literally everyday. It took 3 years to finally get a diagnosis of Hereditary Alpha Tryptasemia (MCAS) and another year to get a diagnosis of Churg Strauss Vasculitis, and over 10+ specialists. I still struggle daily because my allergies aren’t consistent and it’s hard to “stay strong”.

@theallergybadge – 6 years old

As a baby Ella was very unhappy. Always crying, covered in eczema and her face would swell. She then went on to have an anaphylactic reaction to dairy at the age of 1. This was a very frightening experience. She now carries Epipens for dairy and peanut allergies and although it’s sometimes tough checking everything she eats, she is a very happy little girl.

Medication taken : She carries Epipens. Also, she has asthma so she uses inhalers daily.

Hannah (@letstalkfoodallergies – 18+ years old)

Hi, I’m Hannah and I have severe, potentially life-threatening allergies (“anaphylaxis”) to peanuts, tree nuts, sesame, and legumes/pulses. When I was a baby I reacted to peanut butter, and then when I was 5 years old (16 years ago!) I experienced an allergic reaction to a sesame seed roll while on a holiday in Portugal. After this reaction to sesame, I’ve had several tests done and now carry epipens with me wherever I go for use in the event of a reaction. I’ve been very cautious in the way that I live after these experiences, and have been very lucky not to have had any further reactions.

Laia Cañadas (18+ years old)

I first figured out I had food allergies when I was 5. We were at a normal family dinner and we had beans. I had never reacted to them before but on that occasion I had a rash all over my skin, I had trouble breathing and I vomited all over the place. I was diagnosed with allergies and for the next day 3 years I kept developing/discovering new allergies (including dust mites, which I overcame after getting vaccinated for 4 years).

Nowadays I still have the same Food allergies: dry nuts, pepper, cheese, soy and beans (of any kind). Fun fact they are all deadly for me. At the beginning I only had slight reactions, but now I have to be extremely careful because any of them can cause me an anaphylactic shock.

~The story of my life~
And also I did research on my own for a project at school to explain what allergies are, and I grew fond of FARE’s website, highly recommend it ^^