MCAS

Auden (@auggieshealthdiary – 18+ years old)

At age 20, I developed sudden-onset, life-threatening food allergies after a severe tonsillitis infection, which triggered Mast Cell Activation Syndrome (MCAS). In this condition, the body’s mast cells overreact and release chemicals that cause allergic-like reactions. I had no prior history of food allergies, so this shift was incredibly unexpected and difficult to adjust to. While I haven’t overcome the allergies, I manage them by strictly avoiding trigger foods and working closely with specialists to stay safe.

I found the American Academy of Allergy, Asthma & Immunology (AAAAI) website really helpful for understanding allergic reactions and how MCAS can cause life-threatening responses even to foods I previously tolerated. I also follow @foodallergycounselour on Instagram, who spreads awareness about food allergies and helps address the worries and anxieties that come with having them. Their content made it easier to navigate the overwhelming amount of information and advocate for myself with specialists.

I carry EpiPens and take antihistamines.

Alexis (@alexisallergic – 18+ years old)

I never had a food allergy until I turned 24 and it happened out of the blue. One day I’m fine, the next I’m going into anaphylaxis over things that I ate literally everyday. It took 3 years to finally get a diagnosis of Hereditary Alpha Tryptasemia (MCAS) and another year to get a diagnosis of Churg Strauss Vasculitis, and over 10+ specialists. I still struggle daily because my allergies aren’t consistent and it’s hard to “stay strong”.