treenut

Katie (@Katiehollcreative – 9 years old)

March 22, 2023 / , , , , , , , ,

Our first experience with food allergies was when our oldest, now nine, had her first reaction at 6 months old at daycare. There were certainly symptoms she experienced prior that could have alerted us to food allergies, such as eczema and excessive spitting up after eating, but it was initially always diagnosed as reflux until she had formula mixed with her oatmeal. That’s when we had her tested and found out she was allergic to milk, egg, peanut, and tree nuts. Fast forward, all three of our children have multiple food allergies, some anaphylactic. Between the three, we manage milk, egg, peanut, tree nuts, and shrimp. We’ve done some oral challenges and have been able to cross some off, but each has epipens and also our oldest two have asthma.

We didn’t get a lot of information from our allergist apart from “avoid these foods” so it was a big learning curve navigating this new lifestyle. I found lots of useful information on the Food Allergy Research and Education’s (FARE) site and after a few years, found some great Facebook groups to connect and learn from others in the community. Other useful sites were FAACT and Allergic Living. I also wrote a children’s book about multiple food allergies to help educate and bring more awareness to the community in general.

Meryl (@merylottenstein1 – 18+ years old)

March 22, 2023 / , , , , , , , , , , , ,

I had a reaction to nuts when I was 2 yr’s old. I saw many doctors as back then allergies were not very common. I was tested and was allergic to peanuts and tree nuts, and tomatoes. I also have asthma and oral allergy syndrome. I was on different medications and basically made sure not to eat anything with nuts in it. As I’ve gotten older my allergies have increased and I am now ana to eggs and allergic to wheat and many additives. I make sure to read all labels and have started cooking more. It can be very anxiety provoking and I am learning to do meditation and yoga. If I am in social situations where there is food I do not eat it if I feel uncomfortable. Many people don’t understand but I have to put myself first. We need to be our own best advocates. I use Flovent, Proventil, and Singulair medications.

I use FARE for information and many Instagram accounts that provide recipes and support. I believe in research and advocacy and hope that there will be a cure soon. Many more people have allergies today and it seems that there have been a lot of good changes. Social media is very helpful as well as the apps for eating out. It’s important to find a good doctor and always pay attention to symptoms. Don’t be afraid or embarrassed to speak up about it.

Iya (8 years old)

March 22, 2023 / , , , , , , , ,

When my daughter was about 9 months, her preschool teacher called to let me know she was fussy and was tugging on her ears. I recommended some Tylenol since it sounded like an oncoming ear infection. Five minutes later she called and said my daughter’s face was swelling and they had to call 911. This obviously was very terrifying. I worked about 25 minutes away, so called my husband who worked locally to head that way. Luckily, our daughter was breathing fine. We took her to urgent care and gave her benadryl which helped with the swelling and itching. We believe she ate eggs for the first time that morning. This prompted allergy testing where we found out she was allergic to peanut, tree nuts, eggs, sesame. We later found out she has an allergy to green peas. She can now have baked egg. We think we will be able to challenge egg and sesame soon. We use epinephrine and benadryl as needed.

At first, we relied on our allergist and pediatrician for resources. When she was younger, I used relevant FB groups to see how other parents navigated certain situations. I’ve used the Food Allergy Fund and FARE as a resource.

Nathan (1 year old)

January 26, 2023 / , , , , , , , , , , ,

Nathan went into anaphylactic shock after a small spoon of peanut butter when I introduced it to him at 7 months of age. He has not overcome this allergy, and since then we have discovered he is also allergic to eggs and milk (after having reactions to ingestion) and cashews and pistachios (after skin prick testing for tree nuts). All allergens were confirmed by IgE blood testing and we monitor them every 6 months.

I really didn’t know much about food allergies (including the top 9) when I started introducing foods. We have no history of food allergies in my family or my in-laws. Since his diagnosis, I have been on a mission to find as many resources as possible- through Instagram, podcasts, health care providers, and the community.

Ronin (10 years old)

November 2, 2022 / , , , , , , ,

As an infant, we suspected Ronin had eczema and food sensitivities because he was always fussy and blotchy and would spit up after breastfeeding. The pediatrician suggested switching him to a special baby formula at 4 months old. So, we did. But there was no mention of food allergies. At one years old, he had his first reaction to food. It was on vacation while eating some scrambled eggs. I still remember running around like a chicken with its head cut off- because we had no clue what was going on. He had another reaction shortly after that to his birthday cake. It was then that the pediatrician ordered a food allergy panel and it was determined Ronin was allergic to soy (false positive), dairy, egg, peanut, and treenuts. He still has all of those same allergies including a tomato allergy.

We didn’t use any websites early on in our diagnosis because the whole thing was just so new and overwhelming and we honestly had no idea how many resources are actually out there. But in the years since, we have relied heavily on FARE and Allergic Living.

 Jaime (@triofudge – 6/4 years old)

October 17, 2022 / , , , , , , , ,

When my son was 10 months old he had an anaphylactic reaction to peanut butter. I didn’t know it at the time because that was our introduction into food allergies! Since then we have added some allergens to the list of ones we manage. Between our two children (ages 6 and 4) we manage: peanuts, tree nuts, sesame, egg, shellfish and banana. Peanuts, shellfish, egg, and banana were confirmed from having reactions, and then with annual follow-up skin and blood tests at our allergist’s office. Sesame and tree nuts are confirmed through testing only. Both children are currently undergoing SLIT treatment (SubLingual ImmoTherapy) at Allergenuity in North Carolina. We are hoping SLIT will protect against cross contact and hopefully lead to more free eating.

We use information from FARE to educate ourselves, family members, care takers, and school staff members on food allergies in general, how to recognize symptoms and reactions, how to administer epinephrine, and how to create an Emergency Action Plan that fits our family’s needs. We have used information from FAACT to develop 504 plans for public school.

Landon (1 years old)

October 17, 2022 / , , ,

I learned about my son’s food allergies when he was only 6 months old. What was supposed to be a fun milestone (baby’s first food!) turned into a very scary situation, where he had an anaphylactic reaction to pureed peas. After he saw an allergist, they ran some blood work and he tested positive to eggs, peas, peanuts, and a handful of tree nuts. Since then, while slowly introducing new foods, we have unfortunately discovered more allergens.

We used FARE. Also a lot of blogs from other food allergy moms, Facebook groups, and social media.

@peanotforme – 18+ years old

October 5, 2022 / , , , , , , ,

When I was ~1.5 years old, my mom gave me a slice of toast with a thin layer of peanut butter. My whole face turned red immediately and I was given antihistamines. It took hours for the redness to dissipate! We visited my pediatrician and allergist to have me tested. I had huge topical reactions to each nut on the skin prick test. With every reaction to peanuts / tree nuts I have had since then, my allergy became more sensitive and severe to the point where I can’t even be in the same room as nuts without reacting. I cannot eat anything made in a facility or on the same equipment as nuts because I risk anaphylaxis. 

I have never been able to overcome my allergy and was instructed by multiple allergists to not pursue oral immunotherapy (OIT) since it was too risky. But, I like to look on the bright side of living with a severe food allergy! I’ve gained great life skills such as awareness of my surroundings, attention to detail, and compassion. And… as someone with a sweet tooth… it’s a good reason to not eat every piece of candy / baked good in sight!

Growing up, I was the only child in my class with a severe food allergy. The awareness for severe food allergies was not very widespread and protocols were not really developed. My mom referred to my doctors’ advice and saw forums online regarding other parent’s advice on having a child with nut allergies. 

I have suffered a myriad of reactions from itchy throat / redness all the way to an almost deadly anaphylaxis event. As scary as each reaction is, you learn more about your allergy and develop a routine regarding medication. Recently, I redid a skin prick and blood test to specify which nuts I am allergic to now. It has helped me to quantify and understand my allergy more—though I will still be staying FAR away from nuts.

 Omar (15 years old)

October 5, 2022 / , , , ,

Diagnosed with Milk protein allergy as an infant at age 4 months. Diagnosed with tree nut allergies after anaphylaxis at age 2.

My son can tolerate small amounts of dairy but doesn’t eat it often. He’s outgrown some nut allergies but not all.

Used Epi-pen for emergencies only.

Diagnosed before there was information available.

 Cameron (10 years old)

October 5, 2022 / , , , , , , , , ,

Our son was 13 months when he was diagnosed with his first allergy. I fed him mashed peas and he started coughing, then choking a bit and developing hives. His coughing was persistent and he started vomiting as well. It was really scary and I remember feeling helpless. I called 911 and was alone at the time. Before that incident, our son had vomited regularly after eating some foods and we attributed it to reflux. He also had terrible eczema and we just thought he had overly sensitive skin. After an upper GI and swallow study, a few different medications and other specialists evaluating his immunology responses, we finally looked at food allergies as a test. It felt like the most non-linear maze until we got to the pea reaction…and then we followed up with blood work and a skin scratch test. The tests confirmed that our son was anaphylactic to peanuts, most tree nuts, eggs, most legumes (including peas), mustard, sesame and soy protein. He is currently 10.5 years old as of 2022 and has not outgrown any of his food allergens yet.

Once diagnosed, we found FARE, Kids with Food Allergies and FAACT to be the most informative and helpful for creating allergy plans, what to include in an allergy bag and how to understand the basics (reading labels, understanding and preventing cross-contact, and understanding emergency signs and symptoms of a reaction). For every day living, I found several blogs with tips and tricks, recipes and people steps ahead on the journey who could detail tools for navigating this forward-facing health condition! Each meal requires careful planning and we had to reorient our thinking to anchor our plans in safety while also having fun. I was also finding that the Facebook groups brought together families out of trauma (after reactions) and fears (of future reactions) and as a caregiver I didn’t want to raise my kids with extra anxiety. I ended up creating Feedyourcan.com (when some foods you just can’t) as an empowering way to use the struggle as the teacher to help our kids build lasting life skills that will serve them well in food AND non-food challenging situations.