epinephrine

Katie (@Katiehollcreative – 9 years old)

March 22, 2023 / , , , , , , , ,

Our first experience with food allergies was when our oldest, now nine, had her first reaction at 6 months old at daycare. There were certainly symptoms she experienced prior that could have alerted us to food allergies, such as eczema and excessive spitting up after eating, but it was initially always diagnosed as reflux until she had formula mixed with her oatmeal. That’s when we had her tested and found out she was allergic to milk, egg, peanut, and tree nuts. Fast forward, all three of our children have multiple food allergies, some anaphylactic. Between the three, we manage milk, egg, peanut, tree nuts, and shrimp. We’ve done some oral challenges and have been able to cross some off, but each has epipens and also our oldest two have asthma.

We didn’t get a lot of information from our allergist apart from “avoid these foods” so it was a big learning curve navigating this new lifestyle. I found lots of useful information on the Food Allergy Research and Education’s (FARE) site and after a few years, found some great Facebook groups to connect and learn from others in the community. Other useful sites were FAACT and Allergic Living. I also wrote a children’s book about multiple food allergies to help educate and bring more awareness to the community in general.

Iya (8 years old)

March 22, 2023 / , , , , , , , ,

When my daughter was about 9 months, her preschool teacher called to let me know she was fussy and was tugging on her ears. I recommended some Tylenol since it sounded like an oncoming ear infection. Five minutes later she called and said my daughter’s face was swelling and they had to call 911. This obviously was very terrifying. I worked about 25 minutes away, so called my husband who worked locally to head that way. Luckily, our daughter was breathing fine. We took her to urgent care and gave her benadryl which helped with the swelling and itching. We believe she ate eggs for the first time that morning. This prompted allergy testing where we found out she was allergic to peanut, tree nuts, eggs, sesame. We later found out she has an allergy to green peas. She can now have baked egg. We think we will be able to challenge egg and sesame soon. We use epinephrine and benadryl as needed.

At first, we relied on our allergist and pediatrician for resources. When she was younger, I used relevant FB groups to see how other parents navigated certain situations. I’ve used the Food Allergy Fund and FARE as a resource.

Harper (@anaphylactic_kid – 3 years old)

January 26, 2023 / , , , , , , ,

From the moment we started introducing foods to Harper at 6 months old we had problems itchy hives rashes etc. She is our only child so we didn’t know what it was. Even thought it must be normal for babies when they eat certain foods. We got to see an allergist who tested her for eggs and sent us home with Epipens, recommended watching YouTube videos to learn how to use them. 2 years (and lots of hospital visitors for testing, anaphylaxis and check ups) go by and having hot rock bottom after witnessing a very serious anaphylactic shock that nearly took my beloved baby from us. We joined Instagram as a way to connect with others like us and find support… boy did we find support love friends and the answer to our prayers @socalfoodallergy provide a treatment for food allergies like Harper’s and she’s now half way through treatment and should be at complete food freedom by the time she starts school. None of this would have been possible without the amazing people who found us via Instagram. Forever grateful that we get to share our journey with you all.

I reached out to a Facebook moms group who informed me it wasn’t normal and to book to see my GP. I attended zoom meeting ups with other moms of kids with allergies and that’s were I first heard about @socalfoodallergy later on @natashasfoundation contacted me to feature our story on their page. And another mum who was doing to TIP program reached out to me to tel me about this life changing treatment. Our lives have changed so much and the best is yet to come.

Emma & Emmett (@VanessaCutting – 16 years old)

October 14, 2022 / , , , , , ,

My daughter was a little less than a year maybe 9 months old and started breaking out in these horrible rashes. I took her to the pediatrician but they blamed it on me taking her flying at such a young age (but my family lived in Fl and I lived in Baltimore so I wasn’t not going to visit them it didn’t make sense), the pediatrician then blamed it on the fact that I didn’t breast feed my daughter and that is why she had a rash. So needless to say I switched Dr ‘s and instantly they had us allergy test. My son I had a feeling since birth but he was a NICU baby so he was a little more on the complicated side but none the less I had him tested as soon as he came home from the hospital. Call it a Mother’s Gut feeling I just knew. But yet again another Dr this time they said he has cystic fibrosis but i knew it was food allergies. My son would projectile vomit and diarrhea constantly.

No websites used, I did not but in 2006 there wasn’t much info out there. I mean I had to have a DR’s note and notarized to carry an epi-pen on a plane. They were not common. And in 2010 there was some info out but not a lot and I did a lot of research on mom blogs since Pinterest was just coming out. But besides that this journey has been trail and error and me never giving up for my kids sake and for their food allergies.

Daveigh Bea (1 year old)

October 14, 2022 / , , , , , , , , , , , , ,

When we first started introducing solids to little miss we noticed small hives and redness with eggs and milk products as well as an increase in her eczema. At first we did not think much about it and I kept exposing her to milk and eggs thinking she would get use to it but instead she kept getting redness, hives and runny noses. All this would improve with a bath and dose of zyrtec. I had bought some peanut butter banana food pouches and we had given them to her with what I thought was no reactions but one afternoon I came home to my husband freaking out and showed me the baby and she was covered head to toe in welts and hives, he told me all he gave her was the banana peanut butter about 10 minutes prior. She then proceeded to vomit multiple times, now at this point I am still not educated on food allergies or reactions but knew something was wrong so we took her to urgent care by the time we got there the benedryl had kicked in and she was doing better so urgent care pretty much dismissed us. Looking back I realized that she had been having small delayed reactions to peanut butter as she had been vomiting randomly but each time I had given her peanut butter I just did not correlate the two. Currently I am waiting to get into see an allergist as I have had to educate and advocate for ourselves. Our pediatrician did the blood allergy test and gave us an EpiPen and said she was too young for an allergist. Right now her allergies are peanut, eggs, dairy, wheat, oats and peas. We have excluded those foods and have had no reactions and her eczema is gone. We are hoping to try some food challenges once speaking to an allergist. She is now 15 months old still breastfeeding and we have found many safe foods and she is happy and thriving!

I found the websites FARE, The Food Allergy Counselor, and joined some food allergy groups on Facebook. I took it up on myself to learn about food allergies and symptoms of anaphylaxis. I am a mental health therapist and realized I was having increased anxiety around feeding her which let me to the Food Allergy Counselor social media and website where I educated myself on how to help others parents with the same anxious feelings I was having. I educated myself enough to become one of the therapist on their directory for my state I knew if I as a therapist was having these anxious thoughts and feelings there had to be more parents out there that may need an allergy informed therapist!

Elias (1 year old)

October 13, 2022 / , , , , , , , , , ,

We were dealing with eczema since he was 3 mo that old and at times it was so bad he’d scratch and bleed. We went to the pediatrician 4 or 5 times and tried so many ointments. Lots of wrong diagnosis led to my frustration. Then someone suggested seeing an allergist. We learned he was allergic to eggs and dairy from when he consumed them directly because he broke out in hives. Through breast milk it was presenting as eczema. Once he tried wheat he also had hives from that. I had to remove those confirmed allergens from my diet and he was prescribed epipens. I have suspicions of other foods that he is sensitive to but not necessarily breaking out in hives. Those include beef, soy, tomatoes and strawberries.

Primarily diagnosed through seeing hives and then skin and blood test confirmed it. I knew something was wrong from the beginning because he used to cry so much and had such bad colic and gas. He also used to spit up significantly almost every feeding. Once allergens we’re removed form both of our diets his eczema cleared, he was a happier baby, and the gas issues also seemed to resolve.

Abby (18+ years old)

October 13, 2022 / , , , , , , , , , , ,

There were many food allergies and they progressed over time. It began with just peanuts (discovered at 2 years of age after eating peanut butter cup) and soybeans (discovered after consuming veggie burger).
Later on, around 7 years of age, pistachios, cashews,(age 17) pomegranate, (age 10) cantaloupe (13), mangos,(13) mushrooms(18) and paprika (20).
None of these food allergies were overcome, but the allergic reaction was controlled after either a combination of Benadryl and water, or in other extreme cases Epinephrine from an Epipen and Benadryl at the ER.
When the item was cooked and became airborne, difficulty breathing and throat closing happened. Upon consumption of the allergy, throat closing, nausea, and vomiting happened.

No websites were used, just trial and error upon consumption as well as healthcare professional mother who recognized the signs of severe allergies.

BumbleBee (5 years old)

October 13, 2022 / , , , , , , ,

My daughter was colicky from birth, but the truth is colic is diagnosis literally determined by how much your baby cries. 

So I could she was in obvious discomfort all the time, and not just crying out of tiredness or something easier to solve. I would go to the GP, even ended up in A and E, when I did not know what else to do about a baby who was crying non-stop. She was exclusively breastfed. I soon realized one day when I had consumed a lot of cow’s milk, a day when she was especially upset, that maybe this was linked. Throughout the remainder of her first year I cut out milk from my diet (as much as I could). This significantly helped, but didn’t solve it all.

At the age of 3, she started throwing up after eating apples. I initially put it down to choking on the apple skins, but then it just became too instant; a bite of an apple, and then immediate vomiting. We spoke to the GP who sent us for an allergy blood test. 

Her list of food allergies was 3 pages long, apples and Milk being amongst her most severe.

She has not grown out of the allergies, but now we are much more aware of them. We are now aware coughing is her first obvious sign. If my daughter eats something and then starts coughing aggressively and for longer than a few seconds, we add that food to the list of no, no’s. She uses an epipen and antihistamines as and when needed.

I don’t use any websites but there is amazing child allergy community on Instagram, which I frequently learn ideas from.

@theallergyteen – 14 years old

August 11, 2021 / , , , , , , , ,

My sister had a dairy allergy, so I was invited to the LEAP food allergy study – this is where I was diagnosed with a dairy, egg, peanut, and sesame allergy. When I was younger, allergies were very much in the dark ages and eating out or buying allergy safe alternatives were simply not options! Because of this my mum (@lucysfriendlyfoods) decided to start baking and creating allergy friendly recipes. This really transformed my life and made me feel as though I was ‘normal’ and the same as all of my friends, who also enjoyed these baked goodies, and even said they were better then dairy and egg containing bakes!

Medications Taken: salbutamol (inhaler) for asthma and i carry antihistamine and epipens around as a precaution

@theallergybadge – 6 years old

August 11, 2021 / , , , , , ,

As a baby Ella was very unhappy. Always crying, covered in eczema and her face would swell. She then went on to have an anaphylactic reaction to dairy at the age of 1. This was a very frightening experience. She now carries Epipens for dairy and peanut allergies and although it’s sometimes tough checking everything she eats, she is a very happy little girl.

Medication taken : She carries Epipens. Also, she has asthma so she uses inhalers daily.