Story

Alexis (@alexisallergic – 18+ years old)

I never had a food allergy until I turned 24 and it happened out of the blue. One day I’m fine, the next I’m going into anaphylaxis over things that I ate literally everyday. It took 3 years to finally get a diagnosis of Hereditary Alpha Tryptasemia (MCAS) and another year to get a diagnosis of Churg Strauss Vasculitis, and over 10+ specialists. I still struggle daily because my allergies aren’t consistent and it’s hard to “stay strong”.

Shae Averaimo (@shaeallergy_07 – 15 years old)

I was diagnosed with a dairy allergy when I was 6 months old. When I was a baby, I had skin rashes, vomited after I ate, lost weight, and cried a lot. My parents took me to my pediatrician and that is when I was diagnosed. I had my first anaphylactic reaction at 1 year old after eating a small piece of cheese. That is when I saw an allergist and started carrying an Epipen. I am now 15 years old and I did not outgrow my allergy. Unfortunately, it is still just as severe as it was when I was a baby. I have learned how to manage my allergy in all aspects of my life. I was diagnosed by my doctor so I did not use any websites to diagnose. My family and I frequently use information from FARE’s website. I also use the Spokin app.

@ollie.eats.food (1 year old)

We first realized Ollie had an allergy when he reacted to a new formula. Large white welts spread across his face wherever it had touched his skin. After a hospital trip, blood tests and skin prick tests, we found out he had Cows Milk Protein Allergy along with peanut and egg allergy. We avoid all of these foods and he’s thriving and happy. I found the Instagram allergy community so helpful and supportive. We follow lots of fellow parents/children who also suffer allergies. They’re always full of great tips and meal inspiration.

Lauren (18+ years old)

From when I was a baby I was able to eat all foods and was able to have everything. I had no issues with food until my late teens when it all started. In 2017/18 I noticed that I would become unwell soon after eating meals/snacks and first thought that it could have been a bug but then noticed it was happening more regularly and only after I had certain foods which had dairy in them. This then lead me to think that I could be dairy intolerant, so I spoke to the doctor and after a discussion with them I was referred to the dietitian. Before my appointment I had to keep a food diary to track what I was eating and what reaction I was having after it, when I went to my appointment we discussed my symptoms and after our discussion it was decided that I was to avoid dairy completely from my diet. Then a couple years later I began to start becoming unwell again after meals/snacks and thought like I did with the dairy, is it a bug? But no it turned out that I was becoming unwell with egg, then a few months later I was becoming unwell again and because I had already taken dairy and egg out of my diet, the only other allergen I had eaten was gluten/wheat! So I then spoke to the doctor and got another referral to the dietitians; I had to do another food diary, when I spoke to them I discussed about how I was becoming unwell after having egg and gluten/wheat and that it just seems to be one thing after another I am now not able to have. So they said that I should remove them completely from my diet and to start taking multivitamins daily to help make sure I am still getting the nutrients. I’ve also had allergic reactions to vegan cheese as well where my neck and lips become really itchy and my throat and tongue become tingly, so I avoid this too! I’m still currently avoiding all dairy, egg and gluten/wheat and all vegan cheeses. But sometime not in the near future I might reintroduced these one by one in small amounts. I used the NHS website a lot when figuring out symptoms, and google in general. I also got good leaflets from my couple of appointments from the dietitians as well.

@theallergyteen – 14 years old

My sister had a dairy allergy, so I was invited to the LEAP food allergy study – this is where I was diagnosed with a dairy, egg, peanut, and sesame allergy. When I was younger, allergies were very much in the dark ages and eating out or buying allergy safe alternatives were simply not options! Because of this my mum (@lucysfriendlyfoods) decided to start baking and creating allergy friendly recipes. This really transformed my life and made me feel as though I was ‘normal’ and the same as all of my friends, who also enjoyed these baked goodies, and even said they were better then dairy and egg containing bakes!

Medications Taken: salbutamol (inhaler) for asthma and i carry antihistamine and epipens around as a precaution

@theallergybadge – 6 years old

As a baby Ella was very unhappy. Always crying, covered in eczema and her face would swell. She then went on to have an anaphylactic reaction to dairy at the age of 1. This was a very frightening experience. She now carries Epipens for dairy and peanut allergies and although it’s sometimes tough checking everything she eats, she is a very happy little girl.

Medication taken : She carries Epipens. Also, she has asthma so she uses inhalers daily.

@theallergymumdiaries – 3 years old

Florence started reacted to egg when weaned onto solids at 6 months, it all spiraled out of control from there and she is allergic to peanuts and most tree nuts.

Joseph when he was born he wouldn’t feed or grow. He was diagnosed at 3 weeks with CMPA and at a year we discovered he was allergic to soy. He has failed milk and soy ladders several time.

Medicine: Citirizine

Resources Recommended: Allergy UK, Anaphylaxis campaign

Hannah (@letstalkfoodallergies – 18+ years old)

Hi, I’m Hannah and I have severe, potentially life-threatening allergies (“anaphylaxis”) to peanuts, tree nuts, sesame, and legumes/pulses. When I was a baby I reacted to peanut butter, and then when I was 5 years old (16 years ago!) I experienced an allergic reaction to a sesame seed roll while on a holiday in Portugal. After this reaction to sesame, I’ve had several tests done and now carry epipens with me wherever I go for use in the event of a reaction. I’ve been very cautious in the way that I live after these experiences, and have been very lucky not to have had any further reactions.

Florence (3 years old)

I found out Florence had allergies at 7 months old. She reacted to a bit of scrambled egg. Since then, she has gained 5 more allergies. These include peanuts, cashew nuts, pistachio, cherries, sesame and dust mites. She has overcome almond, coconut egg and tomato. I went to a general practitioner who referred us to an allergy doctor.