Story

J’s story (8 years old)

J was sick from 3 months old with tummy, skin, and breathing problems. We took him to many doctors and finally the 6th doctor diagnosed him with multiple food allergies at 17 months old. He has only outgrown a few of these allergies. 

He only takes Zyrtec and an albuterol inhaler as needed. Also, we carry EpiPens on us.

Ham (1 year old)

I knew from birth since he was born with a weird rash all over his face and body. I knew that allergies would play a part in these skin issues since I myself have skin issues related to foods and so does my other daughter. Months go by and we start experiencing worsening eczema and vomiting… although my breast milk was 100% dairy free, he was still having severe reactions after drinking breast milk so I decided to find a formula option that might help him. I switched to a soy formula so I could allow dairy to completely leave his body which cleared up the vomiting issues we were having but the eczema still persisted especially around his eyes, arms and legs. At 4 months we were able to get a scratch test done which proved a dairy allergy and a severe egg allergy as well. I was cooking and consuming eggs daily in our home and he was exposed to them via breast milk and through skin contact. That day we became a complete egg free home and much of his eczema started healing. From then on we have been on the allergy journey slowly introducing foods one at a time mostly with negative results but luckily we have a handful of good safe foods. We fight allergies and eczema daily in our home and continue on our journey figuring out what this little one can and cannot be around. Currently he is allergic to eggs, dairy, peas, dogs, clover, bananas, and other fruits and veggies that we suspect could be a form of oral allergy syndrome. We hope our journey can help spread knowledge and awareness about how people living with allergies face life everyday from birth and beyond.We use topical steroids, Benadryl when needed, and an EpiPen prescription.

William (@positivelyallergic – 8 years old)

William went into anaphylactic shock from a smoothie at the age of 3. Before this, we had no clue he had allergies. Although he had eczema, no medical professionals raised this with us. Since then he has developed further allergies and we are still learning how to manage life with severe food allergies. It is an adventure we are going on, together as a family. William has EpiPens. We found social media as the best tool. You connect with other parents and are able to chat and get their perspective. Anaphylaxis Campaign and Allergy UK are wonderful, informative sites too.

Fiyya (1 year old)

Fiyya has terrible colic as a newborn, then she broke out in red, blistered eczema and would make herself bleed. She was constantly in pain and always was unsettled. Fiyya still has multiple food allergies. The only allergy so far that she’s overcome is wheat.


Fiyya has piriton and antihistamines for any reactions. We also use prescribed creams for her eczema. I didn’t use any websites mainly but I did do a google search at the time when I thought it was allergy related. Obviously google isn’t the best of sources but always listen to your motherly instinct.

 

Isaiah (2 years old)

He had what looked like bad hives, facial swelling and what looked like bad eczema that became raw and wouldn’t go down.

He uses an antihistamine if he has an allergic reaction, emulsifying ointment, and a steroid cream for eczema flare ups.

 

@pfandasthmalife – 17 years old

I was diagnosed with food allergies at 13. I ate a hazelnut and started to have a reaction. My lips swelled, my face was itchy, awful stomach cramps, diarrhea, and vomiting. I went to my doctor who performed skin prick testing and blood tests and confirmed the allergy and issued an EpiPen. Unfortunately, over the last 3 years I have developed more allergies including walnuts, apples, black pepper, strawberries, and I am dairy intolerant. I regularly perform food challenges to see if I have outgrown them.

I already take lots of different inhalers for severe asthma. I have an EpiPen incase of anaphylaxis but have never had an issue. If I have a mild reaction I have antihistamines to take but other then that I don’t take anything else.

Helen (16 years old)

When I was in 7th grade, I tried kiwi for the first time. I remember my mouth feeling very itchy afterwards and a couple hours later my eye began to puff/swell up. I got sent home from school with two (Benadryl’s?) I believe. After that, I was super tired and fell asleep. My eye was better the next day.

@foodallergyinspiration – 5 years old

My little girl has been allergic since birth. She had a hard time gaining weight and would react to anything I ate when I would nurse her. She had eczema all over and stomach issues. Finally around 4 months we got referred to allergy. We found she had a dairy allergy so I eliminated dairy from my diet and finally found her a formula she could tolerate. As we introduced new foods we would notice she would react to them. Before she was a year old we had her tested and confirmed allergies to eggs, soy, peaches, carrots, celery, peas, avocado, bananas, watermelon, and peanut. As time went on the list grew to include coconut, sunflower, figs, nuts, and beef. Most of these items were because of reactions she would have when eating them and then skin and/or blood testing to confirm she was allergic. Over time she has been able tolerate carrots, celery, watermelon, banana, and soy! We are hoping to get even more items off the list! 

 

We carry an EpiPen everywhere we go, as well as Benadryl, a syringe, and hydrocortisone ointment. We also use Zyrtec and steroid creams as needed. She used to get hives and itchy hands all the time but that has gotten better as she’s gotten older. Someone gave us a subscription to Allergic Living magazine and that was very helpful! We also used a lot of info from FARE and Kids with Food Allergies. Recently, we joined instagram and there is a whole community of allergy families with lots of info and tips to share!

Sarah (18+ years old)

My dad was eating peanut butter with bread for breakfast when I was three years old, he was touching the food I was eating and I started to break out in intensive hives all over my body. That’s when my parents took me to the hospital. Eventually we did overcome my allergy, a few relatives had kids with the same allergy so everyone was very accommodating to produce allergy safe foods. 

The only medicine taken was Benadryl when the reaction was not life threatening (hives on skin) but an EpiPen was administered for me when it was clear the reaction was anaphylactic and life threatening.