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Ronin (10 years old)

November 2, 2022 / , , , , , , ,

As an infant, we suspected Ronin had eczema and food sensitivities because he was always fussy and blotchy and would spit up after breastfeeding. The pediatrician suggested switching him to a special baby formula at 4 months old. So, we did. But there was no mention of food allergies. At one years old, he had his first reaction to food. It was on vacation while eating some scrambled eggs. I still remember running around like a chicken with its head cut off- because we had no clue what was going on. He had another reaction shortly after that to his birthday cake. It was then that the pediatrician ordered a food allergy panel and it was determined Ronin was allergic to soy (false positive), dairy, egg, peanut, and treenuts. He still has all of those same allergies including a tomato allergy.

We didn’t use any websites early on in our diagnosis because the whole thing was just so new and overwhelming and we honestly had no idea how many resources are actually out there. But in the years since, we have relied heavily on FARE and Allergic Living.

  Benjamin, Christopher and Abigail (@themomplicatedeater)

October 17, 2022 / , , , , , , ,

When Benjamin was 6 months old, I had eaten a peanut butter and jelly sandwich and given him a kiss on his neck. He broke out in hives in the area he was kissed pretty soon after. We took him to an allergist who diagnosed him. Since then his blood work results have continued to worsen. For both of my subsequent children, our allergist tested them before we introduced foods. With my second child, he was positive for dairy and egg, which I had not cut out of my diet (and was breastfeeding), but did so after his diagnosis. We saw huge improvements with his skin and discomfort level. Our third baby is about to be tested, but based on similar signs that Christopher displayed, I eliminated dairy, egg, soy, gluten and peanuts at 8 weeks of age.

We were so unaware when Benjamin was first diagnosed. But as we’ve attempted OIT and experienced anaphylaxis at home, we have joined Facebook groups, receive several newsletters and follow multiple accounts on IG to learn and grow. Some of the resources we use currently are Allergen Inside and Susie at Spokin.

Elias (1 year old)

October 13, 2022 / , , , , , , , , , ,

We were dealing with eczema since he was 3 mo that old and at times it was so bad he’d scratch and bleed. We went to the pediatrician 4 or 5 times and tried so many ointments. Lots of wrong diagnosis led to my frustration. Then someone suggested seeing an allergist. We learned he was allergic to eggs and dairy from when he consumed them directly because he broke out in hives. Through breast milk it was presenting as eczema. Once he tried wheat he also had hives from that. I had to remove those confirmed allergens from my diet and he was prescribed epipens. I have suspicions of other foods that he is sensitive to but not necessarily breaking out in hives. Those include beef, soy, tomatoes and strawberries.

Primarily diagnosed through seeing hives and then skin and blood test confirmed it. I knew something was wrong from the beginning because he used to cry so much and had such bad colic and gas. He also used to spit up significantly almost every feeding. Once allergens we’re removed form both of our diets his eczema cleared, he was a happier baby, and the gas issues also seemed to resolve.

Abby (18+ years old)

October 13, 2022 / , , , , , , , , , , ,

There were many food allergies and they progressed over time. It began with just peanuts (discovered at 2 years of age after eating peanut butter cup) and soybeans (discovered after consuming veggie burger).
Later on, around 7 years of age, pistachios, cashews,(age 17) pomegranate, (age 10) cantaloupe (13), mangos,(13) mushrooms(18) and paprika (20).
None of these food allergies were overcome, but the allergic reaction was controlled after either a combination of Benadryl and water, or in other extreme cases Epinephrine from an Epipen and Benadryl at the ER.
When the item was cooked and became airborne, difficulty breathing and throat closing happened. Upon consumption of the allergy, throat closing, nausea, and vomiting happened.

No websites were used, just trial and error upon consumption as well as healthcare professional mother who recognized the signs of severe allergies.

 Cameron (10 years old)

October 5, 2022 / , , , , , , , , ,

Our son was 13 months when he was diagnosed with his first allergy. I fed him mashed peas and he started coughing, then choking a bit and developing hives. His coughing was persistent and he started vomiting as well. It was really scary and I remember feeling helpless. I called 911 and was alone at the time. Before that incident, our son had vomited regularly after eating some foods and we attributed it to reflux. He also had terrible eczema and we just thought he had overly sensitive skin. After an upper GI and swallow study, a few different medications and other specialists evaluating his immunology responses, we finally looked at food allergies as a test. It felt like the most non-linear maze until we got to the pea reaction…and then we followed up with blood work and a skin scratch test. The tests confirmed that our son was anaphylactic to peanuts, most tree nuts, eggs, most legumes (including peas), mustard, sesame and soy protein. He is currently 10.5 years old as of 2022 and has not outgrown any of his food allergens yet.

Once diagnosed, we found FARE, Kids with Food Allergies and FAACT to be the most informative and helpful for creating allergy plans, what to include in an allergy bag and how to understand the basics (reading labels, understanding and preventing cross-contact, and understanding emergency signs and symptoms of a reaction). For every day living, I found several blogs with tips and tricks, recipes and people steps ahead on the journey who could detail tools for navigating this forward-facing health condition! Each meal requires careful planning and we had to reorient our thinking to anchor our plans in safety while also having fun. I was also finding that the Facebook groups brought together families out of trauma (after reactions) and fears (of future reactions) and as a caregiver I didn’t want to raise my kids with extra anxiety. I ended up creating Feedyourcan.com (when some foods you just can’t) as an empowering way to use the struggle as the teacher to help our kids build lasting life skills that will serve them well in food AND non-food challenging situations.

Emily (@allergyandwe – 18+ years old)

August 24, 2022 / , , , , , , , , , ,

I was born with extreme eczema especially in the face. After getting breast milk I always reacted. My parents took me immediately to our doc and special allergist. They figured out during my first weeks and months that I have many allergies. I did overcome a lot while growing up. Now I’m still allergic to peanut, egg, soy, peas, lentils, beans and kiwi. I’m also lactose and histamine intolerant but I manage to have it on a normal basis in discussion with my natural practitioner.

My parents mostly reached out to the best docs and allergists in Germany. Since two years I go to a natural practitioner who works on a scientific basis and starts with the roots (gut health and immune system). I really do recommend looking for one working scientifically and visiting on a regular basis.

Laia Cañadas (18+ years old)

July 31, 2021 / , , , , , ,

I first figured out I had food allergies when I was 5. We were at a normal family dinner and we had beans. I had never reacted to them before but on that occasion I had a rash all over my skin, I had trouble breathing and I vomited all over the place. I was diagnosed with allergies and for the next day 3 years I kept developing/discovering new allergies (including dust mites, which I overcame after getting vaccinated for 4 years).

Nowadays I still have the same Food allergies: dry nuts, pepper, cheese, soy and beans (of any kind). Fun fact they are all deadly for me. At the beginning I only had slight reactions, but now I have to be extremely careful because any of them can cause me an anaphylactic shock.

~The story of my life~
And also I did research on my own for a project at school to explain what allergies are, and I grew fond of FARE’s website, highly recommend it ^^

theallergykids (1 year old)

November 13, 2020 / , , , , , , , , , ,

Lactation consultant suggested CMPA, after cutting dairy the list of other allergens grew to soya, egg and peanut confirmed on skin prick test and food challenge. We are still awaiting our youngest to outgrow his allergies. My eldest had an allergic reaction to me eating cashew nuts and after A LOT of fighting with the GP we finally got allergy testing. This confirmed a tree nut allergy which we carry EpiPens for her now. She too is yet to outgrow her allergies but we are hopeful.

Both kids have piriton for first line reactions. We also carry EpiPens for my eldest in case of anaphylaxis. I contacted Allergy UK directly for information and helped get a diagnosis for my eldest and her butt allergy.

With my youngest cmpa through breast milk I had a close friend and I also read through all the information on the Dylan and me blog. Super helpful!

Amanda (18+ years old)

March 8, 2021 / , , , , , , ,

I was born with rashes, leaving my mom to suspect I suffered from food allergies since my first day. However, I was not properly diagnosed until I was 4 years old. My mom was taking me in and out of doctors who couldn’t figure out why the rashes were starting. Most just gave her creams to help them go away but that never helps. It took until one doctor finally suggested an allergist and we learned I was allergic to dairy, shellfish, and red meat. I never grew out of my allergies. They expanded instead. Today, I am allergic to dairy, soy, corn, gluten, shellfish, nightshades, and coconut.

We kept up with the trends of FARE. Recently, we discovered Spokin to help us find new food allergy brands.

@foodallergyinspiration – 5 years old

November 13, 2020 / , , , , , , , , , , , , , ,

My little girl has been allergic since birth. She had a hard time gaining weight and would react to anything I ate when I would nurse her. She had eczema all over and stomach issues. Finally around 4 months we got referred to allergy. We found she had a dairy allergy so I eliminated dairy from my diet and finally found her a formula she could tolerate. As we introduced new foods we would notice she would react to them. Before she was a year old we had her tested and confirmed allergies to eggs, soy, peaches, carrots, celery, peas, avocado, bananas, watermelon, and peanut. As time went on the list grew to include coconut, sunflower, figs, nuts, and beef. Most of these items were because of reactions she would have when eating them and then skin and/or blood testing to confirm she was allergic. Over time she has been able tolerate carrots, celery, watermelon, banana, and soy! We are hoping to get even more items off the list! 

 

We carry an EpiPen everywhere we go, as well as Benadryl, a syringe, and hydrocortisone ointment. We also use Zyrtec and steroid creams as needed. She used to get hives and itchy hands all the time but that has gotten better as she’s gotten older. Someone gave us a subscription to Allergic Living magazine and that was very helpful! We also used a lot of info from FARE and Kids with Food Allergies. Recently, we joined instagram and there is a whole community of allergy families with lots of info and tips to share!