hive

Harper (@anaphylactic_kid – 3 years old)

January 26, 2023 / , , , , , , ,

From the moment we started introducing foods to Harper at 6 months old we had problems itchy hives rashes etc. She is our only child so we didn’t know what it was. Even thought it must be normal for babies when they eat certain foods. We got to see an allergist who tested her for eggs and sent us home with Epipens, recommended watching YouTube videos to learn how to use them. 2 years (and lots of hospital visitors for testing, anaphylaxis and check ups) go by and having hot rock bottom after witnessing a very serious anaphylactic shock that nearly took my beloved baby from us. We joined Instagram as a way to connect with others like us and find support… boy did we find support love friends and the answer to our prayers @socalfoodallergy provide a treatment for food allergies like Harper’s and she’s now half way through treatment and should be at complete food freedom by the time she starts school. None of this would have been possible without the amazing people who found us via Instagram. Forever grateful that we get to share our journey with you all.

I reached out to a Facebook moms group who informed me it wasn’t normal and to book to see my GP. I attended zoom meeting ups with other moms of kids with allergies and that’s were I first heard about @socalfoodallergy later on @natashasfoundation contacted me to feature our story on their page. And another mum who was doing to TIP program reached out to me to tel me about this life changing treatment. Our lives have changed so much and the best is yet to come.

  Benjamin, Christopher and Abigail (@themomplicatedeater)

October 17, 2022 / , , , , , , ,

When Benjamin was 6 months old, I had eaten a peanut butter and jelly sandwich and given him a kiss on his neck. He broke out in hives in the area he was kissed pretty soon after. We took him to an allergist who diagnosed him. Since then his blood work results have continued to worsen. For both of my subsequent children, our allergist tested them before we introduced foods. With my second child, he was positive for dairy and egg, which I had not cut out of my diet (and was breastfeeding), but did so after his diagnosis. We saw huge improvements with his skin and discomfort level. Our third baby is about to be tested, but based on similar signs that Christopher displayed, I eliminated dairy, egg, soy, gluten and peanuts at 8 weeks of age.

We were so unaware when Benjamin was first diagnosed. But as we’ve attempted OIT and experienced anaphylaxis at home, we have joined Facebook groups, receive several newsletters and follow multiple accounts on IG to learn and grow. Some of the resources we use currently are Allergen Inside and Susie at Spokin.

Daveigh Bea (1 year old)

October 14, 2022 / , , , , , , , , , , , , ,

When we first started introducing solids to little miss we noticed small hives and redness with eggs and milk products as well as an increase in her eczema. At first we did not think much about it and I kept exposing her to milk and eggs thinking she would get use to it but instead she kept getting redness, hives and runny noses. All this would improve with a bath and dose of zyrtec. I had bought some peanut butter banana food pouches and we had given them to her with what I thought was no reactions but one afternoon I came home to my husband freaking out and showed me the baby and she was covered head to toe in welts and hives, he told me all he gave her was the banana peanut butter about 10 minutes prior. She then proceeded to vomit multiple times, now at this point I am still not educated on food allergies or reactions but knew something was wrong so we took her to urgent care by the time we got there the benedryl had kicked in and she was doing better so urgent care pretty much dismissed us. Looking back I realized that she had been having small delayed reactions to peanut butter as she had been vomiting randomly but each time I had given her peanut butter I just did not correlate the two. Currently I am waiting to get into see an allergist as I have had to educate and advocate for ourselves. Our pediatrician did the blood allergy test and gave us an EpiPen and said she was too young for an allergist. Right now her allergies are peanut, eggs, dairy, wheat, oats and peas. We have excluded those foods and have had no reactions and her eczema is gone. We are hoping to try some food challenges once speaking to an allergist. She is now 15 months old still breastfeeding and we have found many safe foods and she is happy and thriving!

I found the websites FARE, The Food Allergy Counselor, and joined some food allergy groups on Facebook. I took it up on myself to learn about food allergies and symptoms of anaphylaxis. I am a mental health therapist and realized I was having increased anxiety around feeding her which let me to the Food Allergy Counselor social media and website where I educated myself on how to help others parents with the same anxious feelings I was having. I educated myself enough to become one of the therapist on their directory for my state I knew if I as a therapist was having these anxious thoughts and feelings there had to be more parents out there that may need an allergy informed therapist!

Elias (1 year old)

October 13, 2022 / , , , , , , , , , ,

We were dealing with eczema since he was 3 mo that old and at times it was so bad he’d scratch and bleed. We went to the pediatrician 4 or 5 times and tried so many ointments. Lots of wrong diagnosis led to my frustration. Then someone suggested seeing an allergist. We learned he was allergic to eggs and dairy from when he consumed them directly because he broke out in hives. Through breast milk it was presenting as eczema. Once he tried wheat he also had hives from that. I had to remove those confirmed allergens from my diet and he was prescribed epipens. I have suspicions of other foods that he is sensitive to but not necessarily breaking out in hives. Those include beef, soy, tomatoes and strawberries.

Primarily diagnosed through seeing hives and then skin and blood test confirmed it. I knew something was wrong from the beginning because he used to cry so much and had such bad colic and gas. He also used to spit up significantly almost every feeding. Once allergens we’re removed form both of our diets his eczema cleared, he was a happier baby, and the gas issues also seemed to resolve.

 Cameron (10 years old)

October 5, 2022 / , , , , , , , , ,

Our son was 13 months when he was diagnosed with his first allergy. I fed him mashed peas and he started coughing, then choking a bit and developing hives. His coughing was persistent and he started vomiting as well. It was really scary and I remember feeling helpless. I called 911 and was alone at the time. Before that incident, our son had vomited regularly after eating some foods and we attributed it to reflux. He also had terrible eczema and we just thought he had overly sensitive skin. After an upper GI and swallow study, a few different medications and other specialists evaluating his immunology responses, we finally looked at food allergies as a test. It felt like the most non-linear maze until we got to the pea reaction…and then we followed up with blood work and a skin scratch test. The tests confirmed that our son was anaphylactic to peanuts, most tree nuts, eggs, most legumes (including peas), mustard, sesame and soy protein. He is currently 10.5 years old as of 2022 and has not outgrown any of his food allergens yet.

Once diagnosed, we found FARE, Kids with Food Allergies and FAACT to be the most informative and helpful for creating allergy plans, what to include in an allergy bag and how to understand the basics (reading labels, understanding and preventing cross-contact, and understanding emergency signs and symptoms of a reaction). For every day living, I found several blogs with tips and tricks, recipes and people steps ahead on the journey who could detail tools for navigating this forward-facing health condition! Each meal requires careful planning and we had to reorient our thinking to anchor our plans in safety while also having fun. I was also finding that the Facebook groups brought together families out of trauma (after reactions) and fears (of future reactions) and as a caregiver I didn’t want to raise my kids with extra anxiety. I ended up creating Feedyourcan.com (when some foods you just can’t) as an empowering way to use the struggle as the teacher to help our kids build lasting life skills that will serve them well in food AND non-food challenging situations.

Eat with little J (5 years old)

November 13, 2020 / , , ,

She had an upset stomach and bloody stool as an infant. Then she had severe eczema on her face, which we thought was a drool rash. Then she broke out in hives when given a tiny spec of peanut butter when we started on solids. We decided to get her tested and the result came back with many different food allergies. Have not overcome any allergies; we just avoid them all. When she’s a bit older, we’ll do oral tests for more conclusive results and to see if she grew out some.

We carry a set of epinephrine injections at all times. We didn’t look into any websites while getting her diagnosed. We just went to the pediatrician then to an allergist.

Weston (5 years old)

November 13, 2020 / , ,

When my son was 7 months old he had an allergic reaction at a restaurant to mash potatoes. He began what looked like choking, his skin got red, and he began to get hives on his face. We have fewer allergies now, but still have ways to go!

My son currently takes Zyrtec daily for his environmental allergies. I am a part of food allergy groups, but I mainly rely on our allergist and food allergy symposiums.

Isaiah (2 years old)

November 13, 2020 / , , ,

He had what looked like bad hives, facial swelling and what looked like bad eczema that became raw and wouldn’t go down.

He uses an antihistamine if he has an allergic reaction, emulsifying ointment, and a steroid cream for eczema flare ups.

 

@foodallergyinspiration – 5 years old

November 13, 2020 / , , , , , , , , , , , , , ,

My little girl has been allergic since birth. She had a hard time gaining weight and would react to anything I ate when I would nurse her. She had eczema all over and stomach issues. Finally around 4 months we got referred to allergy. We found she had a dairy allergy so I eliminated dairy from my diet and finally found her a formula she could tolerate. As we introduced new foods we would notice she would react to them. Before she was a year old we had her tested and confirmed allergies to eggs, soy, peaches, carrots, celery, peas, avocado, bananas, watermelon, and peanut. As time went on the list grew to include coconut, sunflower, figs, nuts, and beef. Most of these items were because of reactions she would have when eating them and then skin and/or blood testing to confirm she was allergic. Over time she has been able tolerate carrots, celery, watermelon, banana, and soy! We are hoping to get even more items off the list! 

 

We carry an EpiPen everywhere we go, as well as Benadryl, a syringe, and hydrocortisone ointment. We also use Zyrtec and steroid creams as needed. She used to get hives and itchy hands all the time but that has gotten better as she’s gotten older. Someone gave us a subscription to Allergic Living magazine and that was very helpful! We also used a lot of info from FARE and Kids with Food Allergies. Recently, we joined instagram and there is a whole community of allergy families with lots of info and tips to share!

Sarah (18+ years old)

March 8, 2021 / , , ,

My dad was eating peanut butter with bread for breakfast when I was three years old, he was touching the food I was eating and I started to break out in intensive hives all over my body. That’s when my parents took me to the hospital. Eventually we did overcome my allergy, a few relatives had kids with the same allergy so everyone was very accommodating to produce allergy safe foods. 

The only medicine taken was Benadryl when the reaction was not life threatening (hives on skin) but an EpiPen was administered for me when it was clear the reaction was anaphylactic and life threatening.