anaphylaxis

Y’s story (5 years old)

When he was 1 year old he ate dessert with nuts I didn’t know what anaphylaxis is so I was shocked. I knew something was wrong because of what he ate. I searched the internet and found about food allergies & epipens. When he was about 2 years old he was diagnosed with tree-nuts allergy by the only allergist in Bahrain.
When he was 4 years old I registered him in a learning center that accepts special cases. They promised they can take care of him, but he had a severe anaphylaxis & they didn’t even call me or his allergist and didn’t epi him!
He is now in an international preschool that is really expensive, but it is the only safe place for him to learn and have friends. They know how serious food allergies can be.

We used FARE (foodallergy.org) and red sneakers for Okley.
My native language is Arabic, but there are only little information about food allergies in Arabic. That is why I created my instagram account to share the information in Arabic & spread awareness.

theallergykids (1 year old)

Lactation consultant suggested CMPA, after cutting dairy the list of other allergens grew to soya, egg and peanut confirmed on skin prick test and food challenge. We are still awaiting our youngest to outgrow his allergies. My eldest had an allergic reaction to me eating cashew nuts and after A LOT of fighting with the GP we finally got allergy testing. This confirmed a tree nut allergy which we carry EpiPens for her now. She too is yet to outgrow her allergies but we are hopeful.

Both kids have piriton for first line reactions. We also carry EpiPens for my eldest in case of anaphylaxis. I contacted Allergy UK directly for information and helped get a diagnosis for my eldest and her butt allergy.

With my youngest cmpa through breast milk I had a close friend and I also read through all the information on the Dylan and me blog. Super helpful!

Emily McElroy (18+ years old)

After having multiple non-anaphylactic reactions to peanuts before the age of 2, my physician told my mom to avoid giving me peanuts and assured us that I would likely grow out of my allergy. However, a few days after this, an accidental ingestion of a peanut butter granola bar put me in anaphylaxis and sent me to the hospital. After this experience, I had my first appointment with an allergist who gave me a prescription for epinephrine, and was formally diagnosed with an anaphylactic peanut allergy. I am currently 20 years old, and my last anaphylactic reaction was right before my 18th birthday. 

I’m not currently taking any medication but carry epinephrine and Benadryl with me at all times.

Jenna Tso (18+ years old)

When I was first born, I was given formula in the hospital that I reacted to because it had dairy in it. At the time, food allergies were poorly understood and rarely diagnosed. My mom had to go to multiple doctors to get my allergies tested and a doctor said I was diagnosed with a milk allergy. She also had to go on an elimination diet to see what it was in her breast milk that was making me react severely. I have never outgrown or overcome my dairy allergy, it is still anaphylactic and actually has gotten worse with age. 

I use EpiPens, Albuterol Inhaler, daily Zyrtec, Benadryl as needed, and daily Flonase. I have asthma, food allergies, and other allergies to dust and animals so these help me keep that in check.

William (@positivelyallergic – 8 years old)

William went into anaphylactic shock from a smoothie at the age of 3. Before this, we had no clue he had allergies. Although he had eczema, no medical professionals raised this with us. Since then he has developed further allergies and we are still learning how to manage life with severe food allergies. It is an adventure we are going on, together as a family. William has EpiPens. We found social media as the best tool. You connect with other parents and are able to chat and get their perspective. Anaphylaxis Campaign and Allergy UK are wonderful, informative sites too.

Sarah (18+ years old)

My dad was eating peanut butter with bread for breakfast when I was three years old, he was touching the food I was eating and I started to break out in intensive hives all over my body. That’s when my parents took me to the hospital. Eventually we did overcome my allergy, a few relatives had kids with the same allergy so everyone was very accommodating to produce allergy safe foods. 

The only medicine taken was Benadryl when the reaction was not life threatening (hives on skin) but an EpiPen was administered for me when it was clear the reaction was anaphylactic and life threatening.