milk

Katie (@Katiehollcreative – 9 years old)

March 22, 2023 / , , , , , , , ,

Our first experience with food allergies was when our oldest, now nine, had her first reaction at 6 months old at daycare. There were certainly symptoms she experienced prior that could have alerted us to food allergies, such as eczema and excessive spitting up after eating, but it was initially always diagnosed as reflux until she had formula mixed with her oatmeal. That’s when we had her tested and found out she was allergic to milk, egg, peanut, and tree nuts. Fast forward, all three of our children have multiple food allergies, some anaphylactic. Between the three, we manage milk, egg, peanut, tree nuts, and shrimp. We’ve done some oral challenges and have been able to cross some off, but each has epipens and also our oldest two have asthma.

We didn’t get a lot of information from our allergist apart from “avoid these foods” so it was a big learning curve navigating this new lifestyle. I found lots of useful information on the Food Allergy Research and Education’s (FARE) site and after a few years, found some great Facebook groups to connect and learn from others in the community. Other useful sites were FAACT and Allergic Living. I also wrote a children’s book about multiple food allergies to help educate and bring more awareness to the community in general.

Nathan (1 year old)

January 26, 2023 / , , , , , , , , , , ,

Nathan went into anaphylactic shock after a small spoon of peanut butter when I introduced it to him at 7 months of age. He has not overcome this allergy, and since then we have discovered he is also allergic to eggs and milk (after having reactions to ingestion) and cashews and pistachios (after skin prick testing for tree nuts). All allergens were confirmed by IgE blood testing and we monitor them every 6 months.

I really didn’t know much about food allergies (including the top 9) when I started introducing foods. We have no history of food allergies in my family or my in-laws. Since his diagnosis, I have been on a mission to find as many resources as possible- through Instagram, podcasts, health care providers, and the community.

Daveigh Bea (1 year old)

October 14, 2022 / , , , , , , , , , , , , ,

When we first started introducing solids to little miss we noticed small hives and redness with eggs and milk products as well as an increase in her eczema. At first we did not think much about it and I kept exposing her to milk and eggs thinking she would get use to it but instead she kept getting redness, hives and runny noses. All this would improve with a bath and dose of zyrtec. I had bought some peanut butter banana food pouches and we had given them to her with what I thought was no reactions but one afternoon I came home to my husband freaking out and showed me the baby and she was covered head to toe in welts and hives, he told me all he gave her was the banana peanut butter about 10 minutes prior. She then proceeded to vomit multiple times, now at this point I am still not educated on food allergies or reactions but knew something was wrong so we took her to urgent care by the time we got there the benedryl had kicked in and she was doing better so urgent care pretty much dismissed us. Looking back I realized that she had been having small delayed reactions to peanut butter as she had been vomiting randomly but each time I had given her peanut butter I just did not correlate the two. Currently I am waiting to get into see an allergist as I have had to educate and advocate for ourselves. Our pediatrician did the blood allergy test and gave us an EpiPen and said she was too young for an allergist. Right now her allergies are peanut, eggs, dairy, wheat, oats and peas. We have excluded those foods and have had no reactions and her eczema is gone. We are hoping to try some food challenges once speaking to an allergist. She is now 15 months old still breastfeeding and we have found many safe foods and she is happy and thriving!

I found the websites FARE, The Food Allergy Counselor, and joined some food allergy groups on Facebook. I took it up on myself to learn about food allergies and symptoms of anaphylaxis. I am a mental health therapist and realized I was having increased anxiety around feeding her which let me to the Food Allergy Counselor social media and website where I educated myself on how to help others parents with the same anxious feelings I was having. I educated myself enough to become one of the therapist on their directory for my state I knew if I as a therapist was having these anxious thoughts and feelings there had to be more parents out there that may need an allergy informed therapist!

BumbleBee (5 years old)

October 13, 2022 / , , , , , , ,

My daughter was colicky from birth, but the truth is colic is diagnosis literally determined by how much your baby cries. 

So I could she was in obvious discomfort all the time, and not just crying out of tiredness or something easier to solve. I would go to the GP, even ended up in A and E, when I did not know what else to do about a baby who was crying non-stop. She was exclusively breastfed. I soon realized one day when I had consumed a lot of cow’s milk, a day when she was especially upset, that maybe this was linked. Throughout the remainder of her first year I cut out milk from my diet (as much as I could). This significantly helped, but didn’t solve it all.

At the age of 3, she started throwing up after eating apples. I initially put it down to choking on the apple skins, but then it just became too instant; a bite of an apple, and then immediate vomiting. We spoke to the GP who sent us for an allergy blood test. 

Her list of food allergies was 3 pages long, apples and Milk being amongst her most severe.

She has not grown out of the allergies, but now we are much more aware of them. We are now aware coughing is her first obvious sign. If my daughter eats something and then starts coughing aggressively and for longer than a few seconds, we add that food to the list of no, no’s. She uses an epipen and antihistamines as and when needed.

I don’t use any websites but there is amazing child allergy community on Instagram, which I frequently learn ideas from.

 Omar (15 years old)

October 5, 2022 / , , , ,

Diagnosed with Milk protein allergy as an infant at age 4 months. Diagnosed with tree nut allergies after anaphylaxis at age 2.

My son can tolerate small amounts of dairy but doesn’t eat it often. He’s outgrown some nut allergies but not all.

Used Epi-pen for emergencies only.

Diagnosed before there was information available.

Emily (@allergyandwe – 18+ years old)

August 24, 2022 / , , , , , , , , , ,

I was born with extreme eczema especially in the face. After getting breast milk I always reacted. My parents took me immediately to our doc and special allergist. They figured out during my first weeks and months that I have many allergies. I did overcome a lot while growing up. Now I’m still allergic to peanut, egg, soy, peas, lentils, beans and kiwi. I’m also lactose and histamine intolerant but I manage to have it on a normal basis in discussion with my natural practitioner.

My parents mostly reached out to the best docs and allergists in Germany. Since two years I go to a natural practitioner who works on a scientific basis and starts with the roots (gut health and immune system). I really do recommend looking for one working scientifically and visiting on a regular basis.

Olivia (>1 year old)

August 21, 2022 / , , , , ,

Olivia was a really settled baby for the first 2 weeks of her life and then all of a sudden spent weeks screaming, wouldn’t be put down, had dry rash skin, reflux and lose mucus stools that often contained blood… I thought she was just a ‘fussy’ baby as id read it was unlikely for a breastfed baby to have a milk allergy… I’d got so used to it but I soon realized there was more to it, I took her straight to the doctors and she was put on nutramigen which did not help at all (being breastfed babies are usually put straight on an amino acid based milk as they are highly sensitive due to reacting through breast milk where it’s quite broken down) so we ended up on neocate LCP and she soon became a different baby in every way! Smiling, settled and happy! Her reflux also settled! We are now weaning and so far it’s going well… we had a reaction which we believe was due to fish but I’m yet to introduce it again to check for a second reaction and we have cut out soya now just as a precaution as she’s had bad nappies but we believe they are down to teething! We hope to start the milk ladder in the future. I did a lot of research on the internet… I found out a lot of information on the NHS website but mainly through Facebook support groups about CMPA! They have been a life saver seeing other real peoples experiences as well as being able to ask similar parents/caters questions!

@ollie.eats.food (1 year old)

October 5, 2022 / , , ,

We first realized Ollie had an allergy when he reacted to a new formula. Large white welts spread across his face wherever it had touched his skin. After a hospital trip, blood tests and skin prick tests, we found out he had Cows Milk Protein Allergy along with peanut and egg allergy. We avoid all of these foods and he’s thriving and happy. I found the Instagram allergy community so helpful and supportive. We follow lots of fellow parents/children who also suffer allergies. They’re always full of great tips and meal inspiration.

Ava Grace Goff (1 year old)

February 8, 2021 / , , , , , , , , , ,

Blood tests from the hospital my babies skin was inflamed from 4 weeks old started with spots all over her face and head from 3 weeks It was so severe she has so many tests was in hospital a lot she looked as though she had been in a fire she was riddled with histamine to the point she couldn’t sleep drink properly or do anything but wriggle. Her allergies are dog (severe) wheat, soya, milk, egg, peanuts, hazelnuts and mould. We took Clarithromycin plus ceterezine and neocate formula.

Stephanie (7 years old)

February 8, 2021 / , , , ,

He had a reaction at 7months old which led to testing. He tested positive for wheat, milk, egg. Since then he is now tolerating baked milk for 3 years now. At 4 years old he had a reaction to cashews. He is now tolerating cashews but the subsequent testing revealed an almond allergy. He takes Flovent for maintenance of his asthma. I mostly use websites for recipes as I try to keep up with his allergist on what testing and interventions are available and appropriate for my son.