Olivia (>1 year old)

k12allergies — Sat, 20 Aug 2022 20:32:00 +0000

Olivia was a really settled baby for the first 2 weeks of her life and then all of a sudden spent weeks screaming, wouldn’t be put down, had dry rash skin, reflux and lose mucus stools that often contained blood… I thought she was just a ‘fussy’ baby as id read it was unlikely for a breastfed baby to have a milk allergy… I’d got so used to it but I soon realized there was more to it, I took her straight to the doctors and she was put on nutramigen which did not help at all (being breastfed babies are usually put straight on an amino acid based milk as they are highly sensitive due to reacting through breast milk where it’s quite broken down) so we ended up on neocate LCP and she soon became a different baby in every way! Smiling, settled and happy! Her reflux also settled! We are now weaning and so far it’s going well… we had a reaction which we believe was due to fish but I’m yet to introduce it again to check for a second reaction and we have cut out soya now just as a precaution as she’s had bad nappies but we believe they are down to teething! We hope to start the milk ladder in the future. I did a lot of research on the internet… I found out a lot of information on the NHS website but mainly through Facebook support groups about CMPA! They have been a life saver seeing other real peoples experiences as well as being able to ask similar parents/caters questions!

Payton (@The Allergy Strategy – 18+ years old)

k12allergies — Fri, 28 Aug 2020 12:00:29 +0000

When I was a baby, I was constantly sick anytime I would eat anything with dairy, but it was my first bite of mac and cheese that sent me into anaphylactic shock. After this, the doctors ran tests to diagnose my other, equally as severe, allergies to peanuts, eggs, fish, and shellfish. While I have not grown out of my allergies as we had hoped that I would, I would say we have overcome them mentally by changing our attitude towards my allergies. When I say “our” I mean to include my family, as I know I could not have had the full life that I have despite my food allergies without them. The road hasn’t been easy, but I have learned to see the blessing in the struggle. For one, not a day or a meal goes by that I am not grateful for the safe foods that I can eat. Secondly, my allergies have inspired me to reach out to the greater food allergy community, and have fueled my passion for helping others with severe food allergies which has inspired me to consider adding a Nutrition track as my second major, so I will be able to work as a registered dietitian specializing in helping children with severe food allergies. My greatest hope is to encourage anyone with food allergies to not let it hold them back mentally or make them feel any less than anyone else! Our differences shouldn’t be seen as a hindrance, but as a unique gift that we get to use for good if we decide to.

My allergies primarily involve avoidance of the foods, so no medication on a regular basis, however, I never leave the house without Benadryl, my inhaler, and my EpiPen. I have kept up with my allergist for skin testing and blood tests to keep tabs on the status of my allergies, so I have never had to search for information on my own based on my symptoms. I will say, though, that we are constantly researching new allergy finds and studies, and actually considered OIT, Oral Immunotherapy, as a possibility after a great deal of research a few years back! In general, FARE (Food Allergy Research and Education) is a wonderful resource for food allergy news, but there are many more up and coming resource and informational platforms that I have recently discovered such as EpiCenter and the EpiCenter app by AssureTech.

fish – K12Allergies

Olivia (>1 year old)

Payton (@The Allergy Strategy – 18+ years old)