We didn’t get a lot of information from our allergist apart from “avoid these foods” so it was a big learning curve navigating this new lifestyle. I found lots of useful information on the Food Allergy Research and Education’s (FARE) site and after a few years, found some great Facebook groups to connect and learn from others in the community. Other useful sites were FAACT and Allergic Living. I also wrote a children’s book about multiple food allergies to help educate and bring more awareness to the community in general.
]]>I use FARE for information and many Instagram accounts that provide recipes and support. I believe in research and advocacy and hope that there will be a cure soon. Many more people have allergies today and it seems that there have been a lot of good changes. Social media is very helpful as well as the apps for eating out. It’s important to find a good doctor and always pay attention to symptoms. Don’t be afraid or embarrassed to speak up about it.
]]>At first, we relied on our allergist and pediatrician for resources. When she was younger, I used relevant FB groups to see how other parents navigated certain situations. I’ve used the Food Allergy Fund and FARE as a resource.
]]>I really didn’t know much about food allergies (including the top 9) when I started introducing foods. We have no history of food allergies in my family or my in-laws. Since his diagnosis, I have been on a mission to find as many resources as possible- through Instagram, podcasts, health care providers, and the community.
]]>I reached out to a Facebook moms group who informed me it wasn’t normal and to book to see my GP. I attended zoom meeting ups with other moms of kids with allergies and that’s were I first heard about @socalfoodallergy later on @natashasfoundation contacted me to feature our story on their page. And another mum who was doing to TIP program reached out to me to tel me about this life changing treatment. Our lives have changed so much and the best is yet to come.
]]>We didn’t use any websites early on in our diagnosis because the whole thing was just so new and overwhelming and we honestly had no idea how many resources are actually out there. But in the years since, we have relied heavily on FARE and Allergic Living.
]]>We use information from FARE to educate ourselves, family members, care takers, and school staff members on food allergies in general, how to recognize symptoms and reactions, how to administer epinephrine, and how to create an Emergency Action Plan that fits our family’s needs. We have used information from FAACT to develop 504 plans for public school.
]]>We were so unaware when Benjamin was first diagnosed. But as we’ve attempted OIT and experienced anaphylaxis at home, we have joined Facebook groups, receive several newsletters and follow multiple accounts on IG to learn and grow. Some of the resources we use currently are Allergen Inside and Susie at Spokin.
]]>We used FARE. Also a lot of blogs from other food allergy moms, Facebook groups, and social media.
]]>I found the websites FARE, The Food Allergy Counselor, and joined some food allergy groups on Facebook. I took it up on myself to learn about food allergies and symptoms of anaphylaxis. I am a mental health therapist and realized I was having increased anxiety around feeding her which let me to the Food Allergy Counselor social media and website where I educated myself on how to help others parents with the same anxious feelings I was having. I educated myself enough to become one of the therapist on their directory for my state I knew if I as a therapist was having these anxious thoughts and feelings there had to be more parents out there that may need an allergy informed therapist!
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